Medicaid Cuts Leave Disabled People Struggling: Advocates Allege Discrimination

Florida Woman with Ehlers-Danlos Syndrome Faces Medicaid Coverage Crisis

Jacqueline Saa, a 43-year-old woman from Florida, has been left in a state of anxiety and uncertainty after her Medicaid coverage for home health aide services abruptly stopped at the end of March. Saa, who has a genetic condition called Ehlers-Danlos syndrome that prevents her from standing and walking on her own, relies on a home health aide for assistance with daily tasks such as cooking, bathing, and going to the doctor.

The sudden halt in her Medicaid benefits left Saa without the crucial support she needs to navigate daily life. During the 11-day gap in coverage, she had to rely on her family members for help while struggling to regain her benefits. The situation highlights the challenges faced by individuals with disabilities who rely on Medicaid for essential services.

Advocates and attorneys have raised concerns about the lack of proper communication and support for disabled individuals during the Medicaid eligibility review process. Many people with disabilities have reported losing benefits without adequate notice or assistance, leading to disruptions in care and increased stress.

The National Health Law Program has filed civil rights complaints in several states, including Colorado, Texas, and Washington, D.C., alleging discrimination against people with disabilities in the Medicaid system. The organization emphasizes the importance of ensuring that individuals with disabilities receive the necessary support to maintain their Medicaid coverage.

The complex nature of Medicaid eligibility for home health services adds another layer of difficulty for disabled individuals seeking assistance. Income limits and asset calculations vary for different types of Medicaid coverage, leading to confusion and potential gaps in services for those in need.

As states continue to navigate the Medicaid eligibility review process, advocates are calling for better support and communication for individuals with disabilities. The goal is to ensure that people like Jacqueline Saa receive the care and assistance they need to live independently and maintain their health and well-being.

The challenges faced by Saa and others highlight the importance of a robust and inclusive Medicaid system that prioritizes the needs of individuals with disabilities. As the healthcare landscape continues to evolve, advocates are working to address the gaps and barriers that prevent vulnerable populations from accessing essential services and support.